Edition 8 of the 'You are Strong' Newsletter from Harrison's Fund

Living with Duchenne Muscular Dystrophy (DMD) presents unique challenges that ripple through every aspect of family life. The emotional and mental health toll can be profound, yet there is a powerful resource that families can draw upon to navigate these difficult waters. This resource is hope. It acts as a beacon, guiding families through uncertainty and hardship, helping them to maintain resilience and emotional well-being.

Living with Duchenne Muscular Dystrophy brings emotional as well as physical challenges. This blog explores practical mental health strategies for patients and families, from professional therapy and support groups to mindfulness, routines, and creative outlets. Discover how small, consistent steps can build resilience, reduce isolation, and nurture well-being. With the right tools and community support, families can foster hope and strength together.

A father writes to his son Oskar, calling him his greatest teacher. Through Oskar’s gaze, smile, and innocent wonder, he finds release from anger, permission to surrender, and glimpses of pure presence. From sunflowers and raindrops to the silver hairs in his beard, Oskar helps him see life in its truest form—beyond thought, grief, and struggle. In gratitude and love, he honours Oskar’s wisdom and healing spirit.

This December marks 10 years of support from Tenors Unlimited, who return to St Martin’s Church on Dec 12 for a magical Christmas concert in aid of Harrison’s Fund. Don’t miss their powerful performance of Carry You—a song inspired by founder Alex Smith’s Ironman challenge with his son Harrison. Download the track, join us on the night, and help us make a difference for families facing Duchenne.

We are absolutely thrilled to welcome the wonderful Carole Ann, founder of Truly Carole Ann, to the Harrison’s Fund family! Carole Ann is bringing style, heart, and community together with a Charity Fashion Show & Garden Party — and trust us, you won’t want to miss it. In Aid of Harrison’s Fund on Friday 25th April, 10am – 2pm at the Truly Carole Ann Studio, Maplehurst, Ashtead, Surrey. Cost £5 (pre-purchase only and includes a raffle ticket!)