Edition 8 of the 'You are Strong' Newsletter from Harrison's Fund

In this month’s Ask Max, Maxine reflects on the importance of saying no. Between hospital visits, school meetings, and family life, it’s easy to forget self-care. But sometimes, pausing and rescheduling is the healthiest choice—for you and your child. Saying no isn’t failure; it’s protecting your energy for what matters most.

Today, on World Mental Health Day 2025, we turn our focus to a community whose emotional and psychological needs are often overlooked: children living with Duchenne Muscular Dystrophy (DMD) and their families. While advancements in medical care have improved physical outcomes, the mental health impact of Duchenne is profound and frequently invisible.

Living with Duchenne Muscular Dystrophy (DMD) presents unique challenges that ripple through every aspect of family life. The emotional and mental health toll can be profound, yet there is a powerful resource that families can draw upon to navigate these difficult waters. This resource is hope. It acts as a beacon, guiding families through uncertainty and hardship, helping them to maintain resilience and emotional well-being.

Living with Duchenne Muscular Dystrophy brings emotional as well as physical challenges. This blog explores practical mental health strategies for patients and families, from professional therapy and support groups to mindfulness, routines, and creative outlets. Discover how small, consistent steps can build resilience, reduce isolation, and nurture well-being. With the right tools and community support, families can foster hope and strength together.

A father writes to his son Oskar, calling him his greatest teacher. Through Oskar’s gaze, smile, and innocent wonder, he finds release from anger, permission to surrender, and glimpses of pure presence. From sunflowers and raindrops to the silver hairs in his beard, Oskar helps him see life in its truest form—beyond thought, grief, and struggle. In gratitude and love, he honours Oskar’s wisdom and healing spirit.

This December marks 10 years of support from Tenors Unlimited, who return to St Martin’s Church on Dec 12 for a magical Christmas concert in aid of Harrison’s Fund. Don’t miss their powerful performance of Carry You—a song inspired by founder Alex Smith’s Ironman challenge with his son Harrison. Download the track, join us on the night, and help us make a difference for families facing Duchenne.

Cobham Ladies Choir, fondly known as “The Choir with a Heart,” is once again raising their voices for Harrison’s Fund. Their upcoming charity concert, Summer Notes, features uplifting music, special guests, and heartfelt performances—all in support of families living with Duchenne. With a long history of supporting our work, their energy and compassion continue to inspire. Don’t miss this celebration of community, music, and impact.

We are absolutely thrilled to welcome the wonderful Carole Ann, founder of Truly Carole Ann, to the Harrison’s Fund family! Carole Ann is bringing style, heart, and community together with a Charity Fashion Show & Garden Party — and trust us, you won’t want to miss it. In Aid of Harrison’s Fund on Friday 25th April, 10am – 2pm at the Truly Carole Ann Studio, Maplehurst, Ashtead, Surrey. Cost £5 (pre-purchase only and includes a raffle ticket!)

Dan is running three marathons (in Paris, Stockholm, and Cannes), along with several half-marathons and 10k events, to raise awareness and funds for Harrison’s Fund, the UK’s first charity specifically focused on the mental health needs of families affected by Duchenne Muscular Dystrophy (DMD).

Episode 1 of the freshly redesigned Newsletter from Harrison's Fund