Edition 9 of the 'You are Strong' Newsletter from Harrison's Fund - The Big Give and Ask Max

Max reflects on how purposeful movement supports mental wellbeing while helping raise funds for Duchenne families. She shares simple, realistic ways to get active, boost your mood, and make a positive difference at your own pace.

Edition 8 of the 'You are Strong' Newsletter from Harrison's Fund

In this month’s Ask Max, Maxine reflects on the importance of saying no. Between hospital visits, school meetings, and family life, it’s easy to forget self-care. But sometimes, pausing and rescheduling is the healthiest choice—for you and your child. Saying no isn’t failure; it’s protecting your energy for what matters most.

Living with Duchenne Muscular Dystrophy (DMD) presents unique challenges that ripple through every aspect of family life. The emotional and mental health toll can be profound, yet there is a powerful resource that families can draw upon to navigate these difficult waters. This resource is hope. It acts as a beacon, guiding families through uncertainty and hardship, helping them to maintain resilience and emotional well-being.

Living with Duchenne Muscular Dystrophy brings emotional as well as physical challenges. This blog explores practical mental health strategies for patients and families, from professional therapy and support groups to mindfulness, routines, and creative outlets. Discover how small, consistent steps can build resilience, reduce isolation, and nurture well-being. With the right tools and community support, families can foster hope and strength together.

On a summer’s afternoon, lost in depression, a father imagines his son Theodor soaring through clouds like a superhero. The vision pulls him from despair, reminding him of Theodor’s fierce intelligence, courage, and defiance in the face of Duchenne muscular dystrophy. In his son’s gaze, he finds strength and hope, carried aloft by love. Theodor whispers the simple truth that restores him: “All will be ok, Daddy, all will be ok.”

A father writes to his son Oskar, calling him his greatest teacher. Through Oskar’s gaze, smile, and innocent wonder, he finds release from anger, permission to surrender, and glimpses of pure presence. From sunflowers and raindrops to the silver hairs in his beard, Oskar helps him see life in its truest form—beyond thought, grief, and struggle. In gratitude and love, he honours Oskar’s wisdom and healing spirit.

Edition 7 of the 'You are Strong' Newsletter from Harrison's Fund

When Austin began using a wheelchair, I feared it meant giving up. But what I saw instead was relief and freedom. No more struggles to keep up with friends, no more fear of falling. The chair gave him independence, safety, and dignity. For families facing the same stage, please know you’re not alone. A wheelchair isn’t the end—it’s a tool for inclusion and a better quality of life. Sometimes, embracing the next step opens doors we never expected.

Edition 6 of the 'You are Strong' Newsletter from Harrison's Fund

Caring for Austin, who has Duchenne, can be overwhelming. Max shares her experience with burnout and offers practical tips—from short breaks to celebrating small wins—to help carers cope and find balance.

Edition 5 of the 'You are Strong' Newsletter from Harrison's Fund

This month in Ask Max, Maxine shares her family's honest experience of taking part in a Duchenne clinical trial for over eight years. From early starts and invasive procedures to the strength of community and the hope that fuels every visit—this is a powerful insight into what trials truly mean for families.

Edition 4 of the 'You are Strong' Newsletter from Harrison's Fund

School transitions can be exciting—and overwhelming—especially for families navigating Duchenne. This month in Ask Max, our Family Support Advisor shares her personal experience, tips for a smoother transition, and a gentle reminder that you’re not alone. From EHCP updates to emotional prep, Maxine covers the challenges and the hope this season brings.

Episode 1 of the freshly redesigned Newsletter from Harrison's Fund