Max reflects on how purposeful movement supports mental wellbeing while helping raise funds for Duchenne families. She shares simple, realistic ways to get active, boost your mood, and make a positive difference at your own pace.

Edition 8 of the 'You are Strong' Newsletter from Harrison's Fund

In this month’s Ask Max, Maxine reflects on the importance of saying no. Between hospital visits, school meetings, and family life, it’s easy to forget self-care. But sometimes, pausing and rescheduling is the healthiest choice—for you and your child. Saying no isn’t failure; it’s protecting your energy for what matters most.

Living with Duchenne Muscular Dystrophy brings emotional as well as physical challenges. This blog explores practical mental health strategies for patients and families, from professional therapy and support groups to mindfulness, routines, and creative outlets. Discover how small, consistent steps can build resilience, reduce isolation, and nurture well-being. With the right tools and community support, families can foster hope and strength together.

Care defines us as parents of two boys with Duchenne muscular dystrophy. As their bodies weaken, grief is constant, yet so too is wonder: Oskar accepts with innocence, Theodor resists with fierce intelligence. Caring for them is humbling—an act of defiance and unconditional love, ensuring their spirits remain undiminished. The disease may take much, but it will not define them; their courage and will always shine through.

A father writes to his son Oskar, calling him his greatest teacher. Through Oskar’s gaze, smile, and innocent wonder, he finds release from anger, permission to surrender, and glimpses of pure presence. From sunflowers and raindrops to the silver hairs in his beard, Oskar helps him see life in its truest form—beyond thought, grief, and struggle. In gratitude and love, he honours Oskar’s wisdom and healing spirit.